Bill targets health data practices at unregulated pregnancy centers

A new legislative effort is underway in Wisconsin to address data privacy concerns surrounding unregulated pregnancy centers. State Representative Lisa Subeck (D-Madison) is introducing the SAFEGUARD bill, aiming to regulate how these centers collect and share personal health information.

Understanding the Concerns

The SAFEGUARD bill stems from concerns that these centers, which are not subject to the Health Insurance Portability and Accountability Act (HIPAA) regulations, may be engaging in deceptive practices. Representative Subeck stated the bill is designed to stop abuse, fraud, and exploitation related to medical data.

Did You Know? The SAFEGUARD bill specifically requires centers to disclose what information they will share, with whom, and for what purpose.

The Core of the Bill

The proposed legislation focuses on transparency and informed consent. It would require centers to inform clients about their data-sharing practices upfront. The bill mandates notification to clients in the event of a data breach and prohibits penalizing individuals who choose not to authorize the release of their private health information.

Dr. Laura Hanks, an OB-GYN and legislative chair of the Wisconsin ACOG section, highlighted the importance of informed consent, stating, “Informed consent starts with facts. Our patients deserve accurate counseling from qualified professionals.”

Expert Insight: The introduction of this bill underscores a growing awareness of the potential vulnerabilities individuals face when seeking reproductive health services at facilities not governed by standard healthcare privacy regulations. The focus on disclosure and consent reflects a desire to empower individuals with control over their sensitive medical information.

What Could Happen Next

The SAFEGUARD bill has been introduced in the State Assembly by Representative Subeck and in the Senate by co-lead author Sen. LaTanya Johnson (D – Milwaukee). It could proceed through the standard legislative process, which includes committee hearings and potential amendments.

If passed by both the Assembly and the Senate, the bill would then be sent to the Governor for approval. A possible next step could involve debate and negotiation between lawmakers regarding the specific provisions of the bill. It is also possible the bill could be amended or stalled in committee.

Frequently Asked Questions

What is the purpose of the SAFEGUARD bill?

The SAFEGUARD bill intends to address deceptive practices by unregulated pregnancy centers and protect people’s medical data by regulating health data collection practices.

Are pregnancy centers currently required to follow HIPAA regulations?

No, the source states that these centers are not currently bound by HIPAA regulations.

What would the bill require centers to do if a data breach occurs?

The bill requires centers to inform clients if they are the subject of a data breach.

How might increased regulation of these centers impact access to services for individuals seeking reproductive health care?

Bill targets health data practices at unregulated pregnancy centers | News