Missouri baker makes treats for people suffering from tick-borne allergy as bill to up state resources sits on governor’s desk
Missouri legislators have passed House Bill 2372, a measure that would mandate the tracking of Alpha Gal Syndrome, a life-altering red meat allergy caused by the bite of a Lone Star Tick. The bill is currently awaiting action from Governor Mike Kehoe, who is conducting a review of the legislation.
Why Alpha Gal Syndrome tracking matters
State officials estimate that between 7,000 and 30,000 Missourians may suffer from Alpha Gal Syndrome, yet the true prevalence remains unknown because the state does not currently track the condition. According to the Department of Health and Senior Services (DHSS), the syndrome is an allergic reaction to a sugar molecule found in most mammals. Symptoms range from mild abdominal pain to severe, potentially fatal reactions.
For patients like Jessica Phelps, who operates a bakery in Jefferson City, the lack of data complicates the transition to a restricted diet. Phelps, who was diagnosed alongside two of her children, noted that the allergy affects not only the consumption of red meat but also many common ingredients in processed foods and treats. She reports meeting hundreds of individuals in her community who are newly diagnosed and struggling to navigate the lifestyle changes required by the condition.
Alpha Gal Syndrome is triggered by the bite of a Lone Star Tick, which transmits a sugar molecule that causes the human body to develop an allergy to red meat and animal products.
Current research and the path to diagnosis
Medical researchers, including Dr. Benjamin Casterline at MU Health Care, are working to identify biomarkers that could distinguish between patients who experience mild symptoms and those at risk of life-threatening reactions. Currently, clinicians lack a definitive way to identify high-risk individuals. Dr. Casterline notes that state-level tracking could provide essential data to identify at-risk populations and facilitate further study of the syndrome.
The lack of standardized reporting creates a barrier to understanding the full scope of the public health impact. By categorizing Alpha Gal Syndrome as a reportable disease, the state may be able to bridge the gap between clinical lab work and real-world population health trends.
What happens next for Missouri patients
If Governor Kehoe signs House Bill 2372, Alpha Gal Syndrome will be added to the list of reportable diseases in Missouri. Under the bill, medical providers would be required to submit case reports to the DHSS within seven days of receiving a positive laboratory confirmation. Subject to available funding, the department would then use random sampling to confirm cases against current Centers for Disease Control and Prevention (CDC) surveillance definitions. The DHSS would also be required to submit an annual summary of these findings to the CDC.
While the state reviews the bill, health officials continue to emphasize preventative measures. Because ticks are most active during the summer months, the public is encouraged to wear protective clothing that covers the arms and legs and to use bug repellent containing DEET when outdoors.
Frequently Asked Questions
What is Alpha Gal Syndrome?
It is an allergy to a sugar molecule found in most mammals, typically triggered by a bite from a Lone Star Tick.
How does the proposed bill change tracking?
House Bill 2372 would require Alpha Gal Syndrome to be reported to the Department of Health and Senior Services within seven days of a positive laboratory test.
How can I protect myself from tick bites?
The Department of Health and Senior Services recommends wearing clothing that covers your arms and legs and using insect repellent with DEET when spending time outside.
How would a mandatory reporting system change the daily life of those currently living with this allergy?